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The Long Covid Collective

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HI. I’m Tara and 45 yrs old. I’ve had Covid 3 times and each time it leaves a new Long Covid issue. 11/2020, lost taste and smell and fatigue. 10/2021, migraines, extreme fatigue, brain fog, depression, anxiety, and muscle weakness. 10/2022 ear ringing. I’ve been a part of clinical studies and tried so many solutions but nothing has helped to this point. What I have feared the most is that because of Covid a cyst has developed in the middle of my brain, Sjorgens was diagnosed, and I have MS like symptoms. Some days are much better than others and grateful I can still push through work most of the time.

Jemma Bella
Jemma Bella
17 Tem 2023

Hello Tara, thank you so much for sharing this story with us. I am so sorry to hear that you have had long covid symptoms for so long, that is just awful. It is also awful that you have experienced different symptoms each time you got covid. That is great that you are part of clinical studies, thank you so much for taking part in them as these studies are what will ultimately help long covid sufferers! Sorry that you have the cyst, Sjorgens syndrome and MS symptoms, I imagine that must be really difficult for you. You are doing so well with pushing through work, I really hope you start to get some relief from your symptoms soon and sending lots of love ❤️

Tara
July 16, 2023 · joined the group.

Hi! I’m wondering if anyone has had GI symptoms with their LC and what that has been like for them. I was officially “diagnosed” with LC in Februrary of this year but since April, I have had no appetite, hungry but can’t eat, nauseous all the time, bloating, discomfort, and many GI symptoms. I have been going through a bunch of testing to see if something else is going on and in the process of trying to get diagnosis for POTS but everything keeps coming back negative. Just joined This group and happy to be here. Thanks

Chantal
Chantal
24 Tem 2023

Hi Kassi!

Beforr LC I already had some GI struggles (leaky gut and therefor very sensitive to dairy and gluten). However I noticed that after my second time covid in 2/2023 my sensitivities became way worse and even my dietitian didn't know what to do. Whenever I have a flare up I also seem to lose my appetite.


Through the years I have learned that the biggest part of your autoimmune system is in your GI and since covid weakens your immune system, therefor it is not strange to see GI symptoms. Depending on the type of symptoms it can be wise to use probiotics to restore gut flora, or in case of serious damage like with me, also take some collagen to restore the gut lining. It could also help to temporally lessen foods that you are sensitive to, since it takes a lot of energy to process those foods.


I hope any of this helps, but feel free to reach out!

kassi.aronson1601
July 7, 2023 · joined the group.
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