The Long Covid Collective

Hi, Its been a little over a year since I’ve been struggling with long Covid. I’m 17 now, and a senior in high school. last year I barely went to school, I should not have passed junior year. I lost so many friends because people thought I was just “faking it”. I am behind on the college search and have nothing to show for my application since long Covid cut off all my extracurriculars. Going to the doctor became an extracurricular.

im scared that I have nothing to show for myself even though I’m trying my best. My parents think they know what I’m going through and they are like take meda you’ll do better, but some times the meds just don’t work and I’m just genuinely tired

they think I’m getting better, I think I’m just getting better at hiding it

Hi I’m Erika. I’m 37 and I live in New Jersey, United States. I’ve been suffering from long Covid since January of 2022 after having Covid twice in December of 2021. Although getting an actual diagnosis of long Covid here in the US in next to impossible. Doctors don’t even want to say it let alone attempt to treat it. My main symptom is a migraine everyday for 20 months straight with no relief. I also get lightheaded, dizziness, fatigue, muscle aches, insomnia, gait disturbance as if I cannot walk straight, motion sickness, constant tinnitus, pain in my sinuse/face,I get so easily over stimulated. And of course all of this has led to depression and anxiety. I have even had to walk out of grocery stores and restaurants at times. Previously I was a very active, happy person never felt anxious, loved my job. I enjoyed hiking with my dog…